Health-related quality of life of patients and families with primary immunodeficiency in Malaysia: a cross-sectional study

• Main Authors: Ahmed Meelad, Ruwaydah, Abd Hamid, Intan Juliana, Zainudeen, Zarina Thasneem, Hashim, Ilie Fadzilah, Azizuddin, Muhd Nur Akmal, Mangantig, Ernest, Taib, Fahisham, Mohamad, Norsarwany, Ismail, Intan Hakimah, Abdul Latiff, Amir Hamzah, Mohd Noh, Lokman
• Format: Article
• Published: Springer Nature 2023
• Online Access: http://psasir.upm.edu.my/id/eprint/108154/; https://link.springer.com/article/10.1007/s10875-023-01463-1?error=cookies_not_supported&code=dde7a775-a9f4-4be3-bb37-c8020bbeb4fa

Method This cross-sectional study was performed from August 2020 to November 2020. Patients with PID and their families were invited to answer the PedsQL Malay version (4.0) questionnaire, the tool used to assess the HRQOL. A total of 41 families and 33 patients with PID answered the questionnaire....