Impact of primary immunodeficiency diseases on the life experiences of patients in Malaysia from the caregivers' perspective: a qualitative study

• Main Authors: Ahmed Meelad, Ruwaydah, Abd Hamid, Intan Juliana, Hashim, Ilie Fadzilah, Zainudeen, Zarina Thasneem, Abu Bakar, Firdaus Farhani, Ismail, Intan Hakimah
• Format: Article
• Published: Frontiers Research Foundation 2022
• Online Access: http://psasir.upm.edu.my/id/eprint/101799/; https://www.frontiersin.org/articles/10.3389/fped.2022.846393/full

Introduction: Primary immunodeficiency diseases (PIDs) are chronic diseases that affect the various aspects of a patient’s life. However, the impact of living with PIDs is poorly described. Objective: This study aimed to explore the living experience challenges among the Malaysian caregivers of the...