Informed consent approach in Malaysian Biobanking for research purposes and its ethical challenges / Amnah Azahar

• Main Author: Azahar, Amnah
• Format: Thesis
• Language: English
• Published: 2020
• Subjects: Data processing. Bioinformatics; Genetics; Medical education. Medical schools. Research
• Online Access: https://ir.uitm.edu.my/id/eprint/63930/1/63930.pdf; https://ir.uitm.edu.my/id/eprint/63930/

In biobanking, valid informed consent is crucial to protect participants’ autonomy in relation to the use of their biological samples and their associated data for future research. However, traditional model of informed consent may not be adequate for this purpose as future research is yet to be det...