Challenges of having a child with thalassemia in Pakistan: A phenomenological study

• Main Authors: Rehman, Inayat Ur, Khan, Tahir Mehmood, Bukhsh, Allah, Munawar, Khadeeja, Suleiman, Amal K, Long, Chiau Ming *, Chooi, Wen Han, Al-Worafi, Yaser Mohammed, Tahir, Humera, Fahad, Riaz Choudhry
• Format: Article
• Published: Elsevier 2023
• Subjects: RC Internal medicine; RJ Pediatrics
• Online Access: http://eprints.sunway.edu.my/2769/; https://doi.org/10.1016/j.pedn.2023.06.026

Background: Thalassemia is a persistent hemolytic disease and has debilitating effects on patients and their parents. Parents of these children experience pain and suffer from additional emotional strain as they provide daily and lifetime care and are mostly concerned about the health and future of...