Palliative care for disease with uncertain disease trajectory: an ethical case learning

• Main Authors: Taib, Fahisham, Fatima, Eisha, Abdullahi Faruk, Jamil, Syed Abd Hamid, Syed Abdul Khaliq
• Format: Article
• Language: English
• Published: Penerbit Universiti Sains Malaysia and Malaysian Association of Education in Medicine and Health Sciences 2019
• Subjects: RJ Pediatrics; RJ101 Child Health. Child health services
• Online Access: http://irep.iium.edu.my/87512/14/87512%20Palliative%20Case%20for%20Disease%20of%20Uncertain%20Disease%20Trajectory.pdf; http://irep.iium.edu.my/87512/; http://eduimed.usm.my/EIMJ20191101/EIMJ20191101_07.pdf

Disease trajectory in children can be difficult to determine. This is primarily, despite the life limiting condition, healthcare professionals are unable to pin the exact time when these children’s lives will end. We illustrate an unusual case of dicephalic parapagus, an inseparable conjoined twin w...