Participation in communication and decisions with regards to nursing care: the role of children

• Main Author: Lee, Siew Pien
• Format: Conference or Workshop Item
• Language: English
• Published: 2018
• Subjects: H Social Sciences (General); RT Nursing; RT71 Study and Teaching
• Online Access: http://irep.iium.edu.my/68043/1/68043_Participation%20in%20communication.pdf; http://irep.iium.edu.my/68043/; https://insc.ui.ac.id/why-attend-insc/

Background: There is growing body of literature that emphases the child’s right to information and participation in decision related to health care. There is the need for research centred on understanding children’s experiences of participation in decisions regarding their nursing care and within the Malaysian health care setting. Purpose: The aim of this study was to explore children’s participation in decisions regarding nursing care in an oncological ward. Methods: This was a focused ethnographic study. Participant observation and semi structured interview were carried out with 21 children, 21 parents, and 19 nurses in the paediatric oncological ward. Results: There were different degrees of the participation of children in decisions among children diagnosed with leukaemia. The degrees of participation were oscillated throughout the course of their hospitalization. Conclusions: The children wish to be involved in decision making, but their opportunities for participation are somewhat limited.