Caregiver burden, mental health, quality of life and self-efficacy of family caregivers of persons with dementia in Malaysia: baseline results of a psychoeducational intervention study
Background The majority of persons with dementia (PWD) are mainly cared for by their family members in the home. Evidence is however scarce on family caregivers’ psychosocial burden and quality of life in Asian countries including Malaysia. This study describes the baseline data of a telephone-del...
Saved in:
Main Authors: | , , , , , , , , , |
---|---|
Format: | Article |
Language: | English English |
Published: |
BioMed Central Ltd, Springer Nature
2024
|
Subjects: | |
Online Access: | http://irep.iium.edu.my/113715/7/113715_Caregiver%20burden%2C%20mental%20health%2C.pdf http://irep.iium.edu.my/113715/13/113715_Caregiver%20burden%2C%20mental%20health_Scopus.pdf http://irep.iium.edu.my/113715/ https://bmcgeriatr.biomedcentral.com/articles/10.1186/s12877-024-05221-9 https://doi.org/10.1186/s12877-024-05221-9 |
Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
Summary: | Background The majority of persons with dementia (PWD) are mainly cared for by their family members in the
home. Evidence is however scarce on family caregivers’ psychosocial burden and quality of life in Asian countries
including Malaysia. This study describes the baseline data of a telephone-delivered psychoeducational intervention
study and examines the determinants of outcome measures (caregiver burden, depressive and anxiety symptoms,
quality of life and caregiving self-efficacy) among Malaysian family caregivers to PWD.
Methods This was a cross-sectional study originated from the baseline survey of a randomized control trial of
121 family caregivers recruited from lists of PWD who were registered at memory and psychiatry clinics in three
tertiary care hospitals in Malaysia. The participants were assessed for caregiver burden by the Zarit Burden Interview,
depressive and anxiety symptoms by the Hospital Anxiety and Depression Scale, quality of life by the Control,
Autonomy, Self-Realization, and Pleasure Scale, and caregiving self-efficacy by the Revised Scale for Caregiving
Self-Efficacy.
Results Prevalence of caregiver burden was 69.4%, depressive symptoms 32.2% and anxiety symptoms 32.2%. Family
caregivers to PWD having perceived peer support e.g., social/family/friend/significant other supports were less likely
to report caregiver burden, depressive and anxiety symptoms, and more likely to report higher levels of quality of life and caregiving self-efficacy. Being married and PWD’s ability to self-care were associated with lesser likelihood
of experiencing caregiver burden, depressive and anxiety symptoms. The other determinants of greater probability
of reporting better quality of life were caregivers’ employment and having Islamic faith. Marital status (married),
PWD’s ability to self-care, spousal relationship with PWD and shared caregiving process were associated with higher
likelihood of reporting caregiving self-efficacy.
Conclusion Caregiver burden, depressive and anxiety symptoms are prevalent in family caregivers to PWD in
Malaysia. Social support and caregiving related factors influence family caregivers’ quality of life and caregiving selfefficacy. Implementing psychoeducational intervention and support in the psychiatry and memory clinics may help
improve the psychosocial burden, quality of life and caregiving self-efficacy in family caregivers of PWD. |
---|