A pilot study on pedsql ™ modul impak keluarga among caregivers of children with transfusion dependant thalassaemia in Hospital USM, Malaysia
Thalassaemia is one of the commonest genetic blood disorders in the world. It is characterized by inadequate globin chain synthesis, leading to ineffective erythropoiesis, severe anaemia and chronic disease in children and adults. A child with thalassaemia requires lifelong regular blood transfus...
محفوظ في:
| المؤلف الرئيسي: | |
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| التنسيق: | أطروحة |
| اللغة: | English |
| منشور في: |
2013
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| الموضوعات: | |
| الوصول للمادة أونلاين: | http://eprints.usm.my/37577/2/24ms_Dr._Suria_Emilia.pdf http://eprints.usm.my/37577/ |
| الوسوم: |
إضافة وسم
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| الملخص: | Thalassaemia is one of the commonest genetic blood disorders in the world. It is
characterized by inadequate globin chain synthesis, leading to ineffective erythropoiesis,
severe anaemia and chronic disease in children and adults. A child with thalassaemia
requires lifelong regular blood transfusion in order to prolong survival and reduce
extramedullary haematopoiesis. As any other chronic illness, thalassaemia does not only
affect patient as an individual; it also involves variety of emotional and psychological
burden to the parents and family as a whole. Unfortunately, there are very few studies
done worldwide to assess parental heelth related quality of life (HRQOL) in transfusion
dependant thalassaemia which is the reason why this study is important.
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